Heart Mom

Here is a poem written by a fellow heart mom on the lessons we learn:

Heart mom lesson number ten...

Forget who you were...and who you have been,
Life is about...to take a detour,
And you will be shaken...to your very core.
You've just found out...something's not right,
How will you make it through this plight?
What can you do? What should you expect?
Of life with a child...with a heart defect?

Heart mom lesson number nine...

You'll learn to say...things are just fine,
When people stop... to just say hi,
There will be days...you long to cry.
Bound by worry, fear, and stress,
At times you'll think..."I am a mess",
You'll smile, thinking...can they tell?
Then say..."thank you we’re doing well".

Heart mom lesson number eight...

You'll learn just what it means to wait.
Patience is a virtue right?
Who really needs to sleep at night?
A hospital room... not a permanent state,
As each day passes... home must wait.
Patience is knowing...things won't stay the same,
Patience is accepting...a changing time frame.

Heart mom lesson seven here...

Our children's futures still aren't clear,
Innovations continue to thrive,
Each year more children will survive.
These children...and their families,
Will rise to fight...these CHD's.
Research...is imperative,
Our kid's deserve a chance...to live.

Heart mom lesson number six....

It's clear life holds no easy fix,
If life were perfect...in every way,
I guess...I'd have no need to pray,
I'd still be living...blind...and dim,
Forgetting...I must lean on HIM.
I cannot change the way things are,
But prayer makes God...seem not so far.

Heart mom lesson number five....

Cherish this day...your child's alive.
Today we frolicked in the snow,(Did he like it? hmmm...well...no)
I watched him smile..as snowflakes fell,
I thought...thank God...he's doing well,
A bundled boy...warm hat...one glove,
No doubt about it...this is love.

Heart mom lesson number four...

There is always time for more,
More messes that need cleaning up,
More cartoons on t.v,
More yes...I'm gonna tickle you,
(The best things remain free)
More bubbles in the bathtub,
More stories...one more song,
More this little piggie went to market,
One more...just can't be wrong.

Heart mom lesson number three...

Their special hearts...help us to see...
Did I always understand?
That God holds our lives in his hand?
Before my child...I took for granted,
The gifts in my life...that God surely planted,
Before my eyes...I missed them...how?
My heart child came...I see them now.

Lesson number two...

take heart...It is okay, to fall apart...
It's not easy, we don't know...
Will we watch our children grow?
God looks to his angels...saying see why I chose her,
She's never afraid to lose her composure...
In her heart...she feels defiled,
But nothing will stop her... from loving her child.

Heart mom lesson...number one...

It must be said...we're never done!
That day...will never come you see,
We'll always face uncertainty,
But I will face each day unknown,
Taking heart...I'm not alone,
These lessons... remind me to cope...
Stand strong...
believe...and always hope...

~Stephanie Husted